When One Is Not Like the Other


As most of you know, one of my twin boys has Down Syndrome and the other does not. One thing I have found is that we have not come across many other families like ours, so I thought it might be helpful to share our experience thus far. 

First, to answer a question I get most often…

No, we did not know Dominic’s diagnosis before birth. 

I think this is a good jumping off point. We did not know that Dominic would have DS but we were aware of the possibility. Because I was pregnant with twins and had undergone IVF, I was immediately referred to a specialist because I was considered high risk. There, it was suggested that I take a chromosomal blood test to check for any abnormalities. Although the test could not tell us a definitive yes or no, it could tell us if there was a greater chance of one or both babies having a chromosomal abnormality. My test revealed that there was a greater chance for one or both of the babies to have DS. At that point, they asked if we wanted to do further testing for a definite answer, and we chose not to put our babies at risk because we knew it didn’t matter to us.

I had a relatively easy pregnancy and neither babies showed any “soft markers” for DS. Many babies show signs of having DS while in utero, but both babies looked perfect until the last month of my pregnancy. Dominic’s growth had slowed down and there was a definite placental issue, so instead of letting me go to full term, my doctor decided to induce me at 37 weeks. In that last month, as a final attempt for Dominic to gain some weight, I increased my protein and caloric intake. It worked and my boys were born at 37 weeks at 5 lbs 5 oz and 5 lbs 12 oz. 

From birth, we could see that Dominic could have DS but he lacked a lot of the physical traits, so the only way for an accurate diagnosis was to get his umbilical cord blood tested. Shortly after birth we received the confirmed diagnosis. A lot of people share that they felt grief upon learning their new baby has DS. I think that the early on chromosomal test is when I grieved. I took that news very hard because we had worked so hard to get pregnant and I felt like once we actually got pregnant, everything would be perfect. I was worried that we would have anything less. Little did I know, my boys are beyond perfection. I know how that sounds, but it’s true. 

While we were still in the hospital, there was a moment with Dominic that I will always cherish. I took him in my arms and held him close, smelling his head and kissing his face, telling him how I felt about this life we would share together. I told him that people may not see how special and wonderful he is right away. They may make judgements before they get to know him. That things may be harder for him. That we will need to support one another every step of the way. But first and foremost, he is loved and wanted. We could never possibly understand what this love would feel like. To be a new mom and have these two gorgeous babies was nearly too much for my heart–I thought it could burst. 

Twins are a very special and unique thing. My boys have known each other since the very beginning, and to see them smile at each other, you know that their bond is unbreakable. I know that there will be fights and jealousy, but I believe in my heart that they will always support one another. I feel like they were born to be together, to be best friends. To know that Dominic will teach Giovanni to love without bounds and to be inclusive, while Giovanni will teach those around him by his example, is such a gift. I think that they will be each other’s biggest fan and protector.

So, yes, one is not like the other and that’s how we like it in our home. True individuals but cut from the same cloth. 

xo

I’m No Superwoman

Lots of friends and family say thing like “twins, I don’t know how you do it”or “twins, I can’t imagine”. I’ll tell you exactly how I do it, and spoiler alert, I’m not a one woman show. I will say this…I don’t mind patting myself on the back for choosing the best partner imaginable, but other than that, I am just fortunate.

My husband, my rock, scored a job that allows him to work from home. Now, Marv does have to do a little travel and has appointments that take him away from home, but it isn’t often, and when he’s home, he’s amazing. His mama raised him right. Marv does everything for the babies and he even washes my pump parts and all of the baby bottles at the end of the day. He actually has a very sweet bath time ritual for the boys, and I love that he has that time with them. Above all, he is present, and I appreciate having a partner that is cherishing this time as much as I am. 

On a daily basis, my dad is there for us. My dad treats being a grandpa like the best job he has ever had. First and foremost, he moved from California to Washington and bought a house ten minutes away from us. The babies were born in March and he closed on the house in April–he’s been here since day one. He comes over every day during the week around 9:30 and stays until around 5:30. My dad changes diapers, feeds the babies, goes with me to baby class, will stop at the market if we need anything, and he takes the dogs out for potty breaks. We are so lucky to have him here and so involved. 

For those of you keeping score, that’s THREE adults and TWO babies. 

Most of the time there are at least two of us caring for the babies, but there are times when I’m alone. Often, I’m only on my own for a few hours. Mornings are actually kind of amazing and among some of my favorite moments. I love looking at Dominic holding his own bottle and stroking his hair, while gazing down at Giovanni nursing and playing with my necklace. And, to see them sitting side by side in their high chairs, eating like big boys, is so sweet. It can get tricky and sometimes there is more crying when I’m alone, but babies cry and it is okay. I always remind the boys that “mama has two babies” and that I’m doing my best. 

I wonder if I can enjoy moments alone because I know that help is on the way. Sometimes, I call myself a “twin mom poser” because I’m not like other twin moms, toting two car seats into Target or wearing two babies at once. I need to stop that, I’m not being kind to myself. Every mama’s journey is different, and you do your best to give your babies the best life possible. That’s it. You don’t need to be Superwoman.

Life with Two Tiny Humans

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The last time I shared a post, the boys were 3 months old, and so much has changed since then as we approach their first birthday. I have missed writing here and sharing about our life, so I have given the blog a new look and will be sharing as much as possible about what’s going on here. I will, of course, be more focused on motherhood, but I will still share about cooking and food, secondhand finds, home renovations and decor, and our adventures. For any of you that are new here, allow me to fill you in a bit.

After a long struggle with infertility, the combination of an amazing doctor and his team of nurses along with tremendous support from family and friends, we hit the baby jackpot and became pregnant with twins. Our boys are the greatest gift imaginable and our lives are forever changed. Giovanni is spunky and curious, while Dominic is sweet and soulful, and their love for each other is clear. Dominic was born with Down Syndrome, so not only are we new to parenthood and twin life, but we are also a part of this wonderful Down Syndrome community.

Back when I was writing more regularly, we were in the first home we purchased, enjoying Taco Tuesdays, I worked full time, and my adventures involved lattes and concerts. Nowadays, we are in our forever home, and as a full time stay at home mom, I cook more often than Tuesdays and it’s not usually tacos, and our adventures are leisurely walks and sometimes include farm animals. Life has evolved into something new and it’s pretty amazing.

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I do hope that you’re along for this new ride with me and my tribe.

xo